Where Have We Been

Where Have We Been

WORKING REALLY HARD! I PROMISE…

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Please join us on our NEW and IMPROVED website www.specialneedssiblings.com !! We have transitioned and hope you can come too!! We miss you but we are back!! Thank you for giving me the support and encouragement to continue! We are a strong community and I pray we continue to grow and improve.

LOVE,

SNS

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Special Needs Siblings: Julia & Colin

Special Needs Siblings: Julia & Colin

❀️🌟 Thank you so much Lauren for being such an wonderful mother!! We really enjoyed hearing from you and about your daughter Julia. She sounds like such a joy! Thank you for allowing us to share your story with others to start off this New Year with encouragement and love. SNS! 🌟

My name is Lauren and I’m a single mother of two wonderfully amazing children! My oldest daughter Julia is 13 and my non verbal autistic son Colin who is 5. Words don’t describe how blessed I am to have these two kiddos because without them I’d be lost.
The reason for my email is really to tell you about my 13 daughter Julia who is my rock my best friend and the daughter every parent dreams of! Julia has always been a straight A student who is always there to lend a helping hand and the kind of patience and love in her heart that we all strive to have!


This past year my ex husband and their father had to walk away from the children’s lives as he struggled with an addiction he is hopefully trying to overcome to this day but knowing that these two kids dearly miss their father and hurt inside ways I’m not even aware of at times. Christmas is just a few days away and I want nothing more than for these two babies have their father back and healthy but realistically that’s not in the cards for the time being!

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Please don’t feel bad for my children or myself but remember this holiday season that we all should be thankful for everyone and everything we have in our lives and that no matter what show the ones you care about that you love them and are so blessed to have them in your life. Never take anything for granted because it can all disappear in an instant and those memories are all you’ll have left.

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The Sibling Seesaw

The Sibling Seesaw

Long time… No write… Count it to my head not my heart.

Lately, as a mother I have been on this rollercoaster of emotion especially with my boys, Caleb and Christian. I have spoken previously about inclusion and understanding regarding Caleb and his older autistic brother Christian. Now, I have been put in a bit of a pickle and I am praying I make the right decision.

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My sons are pretty close in age, 11 and 9, so their entire circle of close friends is the same. Β I wouldn’t consider myself a helicopter mom, but they have never spent the night at anyone’s house other than family. So that pretty much brings us to date. One of their friends is having a sleepover and invited them to attend. Now, I agreed without hesitation because I know the parents, the children, and am comfortable with the environment. Β This was a few weeks ago. Now I am hesitant. The birthday sleepover is this Saturday and I find myself extremely anxious. I do not want to separate my boys because they were both invited.

Firstly, I do not want Christian to attend and something negative happens while in someone else’s care. Sounding very β€˜helicopter’ like, but I really do not feel at ease entrusting someone with him that isn’t trained or equipped to deal with his differences. Then I go back on my seesaw and think of Christian. I remember walking in to pick him up a couple weeks ago at daycare and he was balled up in a corner while younger kids were throwing blocks at him. He is 11 years old, but he was curled up crying. He was saying repeatedly, β€˜Stop it. Stop it. No one likes me. No friend.” I had to remove him immediately. He has finally begun to associate himself with feelings of acceptance and friendship. He will ask for some of the boys attending the sleepover by name. This has been a transitional year for him going to middle school. Β Christian has been making such great progress towards his communication. He is trying to hold conversations with kids his age rather than just standing parallel with them. If I do not allow him to attend am I also holding him back or simply protecting him.

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Secondly, there is his wonderful brother Caleb. Caleb is super excited about attending his first sleepover! No girls allowed, unlimited video games, pizza galore he is pumped up! I am thrilled he can spend time with his friends. He has spent the first half of the school year successfully bringing up his grades and receiving positive conduct reports. He has stood up for his brother numerous times… even though they still treat my house like a WWE match. I am so proud of his progress! He deserves some unfiltered fun.

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I’m torn because I would like Caleb to enjoy a sleepover without the undue pressure of watching Christian; on the other hand, I don’t want to deprive Christian of social development. Is it insensitive putting Christian’s special restrictions and concerns on another family during a time of fun?

I know this is just the beginning.Β  As they get older Caleb will want to do things on his own. Christian will need friends with more similarities. Is that even the right way to say it? I have never been good at being politically correct. I am blunt and bubbly. Yet, I really do not know in the moment. I do not know what choice I will make, but I pray for the peace to make it. I pray they both know how much I love them. How I would do anything to protect and nurture them, physically and emotionally.

All this just to say it is another day in the life of Special Needs Siblings. Do you have a similar experience? How did you cope? I would to hear about it!

Special Needs Siblings: Alex & Jackson

Special Needs Siblings: Alex & Jackson

❀️🌟 A heartwarming thank you to Rebecca, a  34 year old mother of four: Alex (8), Jackson (7), Ava (6), and Isabel (4), from Tennessee. She allowed her son Alex to take part in our SNS interview and share parts of his heart with us! We honor you, Alex! SNS 🌟❀️

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SNS: What is your favorite memory?

Alex: β€œWhen Jack and I rode roller coaster together at Dollywood and we screamed and laughed and had a great time!”

SNS: Are there any activities you like because of your sibling(s)?

Alex: β€œI love making Jack laugh! He thinks it’s funny when I act out different movies and we play together. He makes me want to be a better actor, so I’m always trying to find new costumes and things to make him laugh and happy.”

SNS: Has your sibling ever influenced the type of friends you associate with?Β 

Alex: β€œSome of my friends I don’t talk to anymore, because they made fun of Jack when he left school. It wasn’t Jack’s fault but they won’t listen and they wouldn’t leave him alone, so I don’t hang out with them now.”

SNS: Does your relationship with your sibling(s) make you strive to better yourself in any aspect of your life?

Alex: β€œJack makes me want to be kind. He makes me want to help other people and he shows me how to be strong. I like that Jack thinks I’m funny and that I can help cheer him up whenever he’s upset or angry.”

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SNS: Do you think your positive relationship with your sibling(s) has helped you gain important characteristics such as confidence and compassion?

Alex: β€œJack showed me that I have to stand up for people. If I see someone getting picked on or made fun of, I have to step in and tell the other guy β€˜hey, knock it off!’ And if they don’t, I have to find a teacher and get them to stop. It’s not funny to pick on people and I don’t like it when kids pick on people who can’t talk.”

SNS: What are two things you wish everyone could know about people with a disability?

Alex: β€œI wish people knew that Jack can’t help it sometimes. When he gets upset, he’s trying not to be, but he doesn’t know how to say what he wants to, and that makes him mad. I wish people wouldn’t make fun of Jack. It hurts my feelings, because Jack just wants to be friends with people. He’s my best brother and my best friend. And I have to help him because I’m his big brother and I love him.”

SNS:Β What in your view should people not say to siblings of people with a disability?

Alex: β€œDon’t make fun of people with autism. It isn’t funny. They aren’t making fun of you!”

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Special Needs Siblings: Scholarship Opportunity

Special Needs Siblings: Scholarship Opportunity

Yow Sibling Scholarship

SCHOLARSHIP INFORMATION:

Yow Sibling Small Scholarship Application: Due May 31, 2017 by 11:59pm

Requirements for Scholarship: must be a college student who ACTIVELY participates in taking care of their sibling with a physical ailment, physical disease, and/or physical disability. Must be enrolled as full time student, and must not be on academic probation. The limitations are not bound by state or university in which the individual attends. β€”email proof of enrollment at a University to Bella Soul (does not need to be a transcript; scholarship is not based on GPA but will be taken into account)

Name:

Year:

GPA:

University:

Disease/Disorder:

Please write a 3 page double spaced story about the triumphs and struggles of helping to take care of your sibling with a disease/disorder. Include answers to the following questions: Explain your day to day routine. Explain what you have learned from your sibling who is confronting a disability. What advice would you give to another individual confronting similar adversity?

Link for more information:Β http://livebellasoul.org/scholarships/sibling-scholarship

Special Needs Siblings: We Need You

Special Needs Siblings: We Need You

If you know a special needs sibling…
If you are a special needs sibling…
If you are the parent of a special needs sibling…
Tag. Share. DM.Contact.
#SpecialNeedsSiblings

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SpecialNeedsSiblings@gmail.com

Special Needs Siblings: Jack & StueyΒ 

Special Needs Siblings: Jack & StueyΒ 

Super Sibling Submitted by Dad!

Hi there, this is Jack and his big brother Stuey.


Jack has Idic15, autism, heart block and Lennox Gastaut syndrome Epilepsy. 3 1/2 years ago after an awful tonic clinic seizure Jack had stopped breathing , Stuey stayed calm and administered CPR and saved Jacks life , the doctors said without Stueys intervention We would have had a different outcome . Jack is 17 soon and is having VNS surgery very soon.

We are proud to honor you Stuey! Thank you for being such an amazing brother! ❀️